I have recently decided to start a small/support group for those women dealing with infertility and miscarriages. I wasn't sure if I was suppose to. I have prayed about it for a very long time. The thought and desire never left. I asked others what they thought and they all felt like it would be perfect. The need is great in our church.
I went to leadership training.
I came up with a name. It isn't the first group by this name but it felt right. Hannah's Hope. Hannah prayed to God for a child for many years. She told God that when He gave her a child she would give her child back to Him. God granted her desire and in turn she gave her son, Samuel, to Eli to serve God. Therefore we are all like Hannah, hoping for our miracle.
Information was placed on the church website.
Today it was featured on the front of the church bulletin.
Now I wait. I wait for women to contact me. I plan to also advertise at a few places including my doctor's office.
I am in a good place and have a wonderful support system but I know of many women who do not. I also know what it is like to be on this sad journey alone. Being alone isn't a place to be when dealing with infertility or miscarriages.
Sunday, January 28, 2007
Hannah's Hope
Posted by Sunny at 6:00 PM 7 comments
Opening
of the envelope took place!
I didn't want to. It wasn't because I was being nosy. (But I did have a glass of wine at my side.) I needed to see if it had some of my tests in it. No answers there.
I didn't really learn anything new. A lot of my files were left out. I guess my doctor didn't find them important. All of my previous testing and Grumps as well were not included. I guess since we did get pregnant none of that was super important.
My pictures were there of my lovely insides. I have seen them many times. A toxic waste dump without adhesions and scar tissue. My doctor is still shocked by that.
My old charting charts were there. I will bring my recent months along.
The pathology reports and my visit notes.
The detailed report of my lap. There I found something I have always wondered but was afraid to ask.
I told the stage of my endometriosis. I always guessed what I thought it would be. I also hoped what I wanted it to be. I teared up when I saw what it really was.
Stage IV Endometriosis
I am very blessed to have gotten pregnant at all. I am also blessed that my girl parts work. But hearing stage IV makes my heart sink a little.
I filled out all the paper work the best that I could. I don't know Grumps sperm results. I don't know all the blood tests that were done. I am sure he can figure out what was done to both of us. The big thing is the endo.
Grumps favorite question to torment me with is: if you drink, how much do you consume per week/day? I said once a day. (okay it might be a little more or less depending on the day) Grumps was twice a week. He called me an alcoholic. I told him to live in my shoes for a day. He has no place to judge.
Tomorrow morning is the big moment. I am sure I know what he will say. I still need to make my little list of talking points. I am sure Grumps will be of no help. He is only going because I know that they will want to talk to him.
I will report back with the bigger game plan.
Posted by Sunny at 4:05 PM 4 comments
an attempt at organizing: endometriosis, Grumps, RE, testing
Wednesday, January 24, 2007
Insightful Advice
I love how people hear pregnant or babies and assume it is you.
Today a teacher friend and I were talking about next year. I said that if I were pregnant I would be due in October. I said I were pregnant with twins I would take the year off. As I was saying all of this the librarian in came in putting an arm around me asking if I was. HA! I actually laughed. I said, "NOPE! It would be a miracle! I have tried for 4 years."
Here we go! I love advice! I love that I have tried for the past 4 years and don't know poop!
The lady said, "I have a friend who tried for 14 years. She didn't do any treatments and now has 4 kids. I told her husband that he needed to wear boxers and they now have 4 kids."
I laughed and said, "That would be nice but the doctor said that my insides look like a toxic waste dump."
I laughed again and she patted my back and said, "I am so sorry."
I laughed even harder in my head. MAN if I had only known about the boxer shorts!
I still haven't looked at my envelope. BUT I bet it will happen soon! D and I were going to check it out but we partook of too much wine!!!
Posted by Sunny at 7:44 PM 4 comments
an attempt at organizing: advice
Sunday, January 21, 2007
About the Envelope
Okay first I haven't opened it! It is still there.
Second I totally want to read about my body and all that stuff. I love science, medical stuff (like the word stuff!) and know everything I can about myself. The problem is I don't want to read about my miscarriage. I don't want to know anything else about it. I seriously doubt that they have anything about the sex or that kind of stuff BUT what if they do?
THAT is my problem with the files in the envelope.
I seriously need to find a better word than stuff. I can't believe I sued it 4 times in a very small paragraph!!! I promise I am a better writer than that!
*anonymous ummm I am not sure I get your advice. If it were that simple I would have had MANY children by now . Trust me, I have tried it all! Those of you on this road totally know what I am talking about. But thanks for trying to help!
Posted by Sunny at 3:49 PM 7 comments
an attempt at organizing: advice, miscarriage
Saturday, January 20, 2007
The Envelope
My doctor told me to give him a call when I got my RE appointment scheduled. He wanted to send me off with some of my files and the lovely pictures of my insides that he cherishes so much. I had to promise to return them. He deserves to keep them for all the work he has done for me.
Of course when I called to ask if my files were ready I got a HUGE, "HEY SUNNY!" When I went into the office I got big smiles and hugs. We talked and joked and hoped that I would return soon with good news.
All the way home I thought about that envelope. I wanted to open it and take a little look at all those notes my doctors keep. All the reports and charts. I didn't open it.
Right now it is sitting on my kitchen table with the file that needs to be filled out for my new RE. My name is on the envelope. It is sealed with tape. I know that the seal isn't to keep me out. I know that I have all the right in the world to open it and read. But I don't.
I won't.
I can't.
I know what it all says. I know what my body has turned into. I know what the doctors have told me. I know that they don't lie or distort the facts. BUT what if there is something that I didn't know. What if there is more to my miscarriage. More little details that were 'forgotten'.
I know I am totally crazy. I know I should just take a look but I can't. Man that envelope is going to haunt me in my sleep for another week!
Posted by Sunny at 5:21 PM 9 comments
an attempt at organizing: miscarriage, RE
Tuesday, January 16, 2007
Thoughts
Today in my classroom one of my sweet second graders came up to me and asked me why I don't have any children.
I told her, "I am waiting for God to give them to me."
She asked me how old the other teacher I work with was.
I said, "30."
She said the other teacher is pregnant.
I said, "yes."
She then asked how old I was.
I said, "31."
She was silent after that. I am sure her mind was wondering why I wasn't and the other teacher was when I am the older one.
You gotta love being a teacher with honest children.
Also today I talked with a teacher who dealt with infertility 15 years ago. She told me her story and then told me how she couldn't remember all that she did to get pregnant. She said that I will one day forget all of this.
Ummmmm I don't think that is possible. I am sure it won't feel or hurt the same way but I will never forget this journey.
How could she have forgotten if she did IVF or not? Seriously!
Posted by Sunny at 9:23 PM 6 comments
Sunday, January 14, 2007
Grace
By Michael W. Smith
I was lost when ya found me here
You pulled me close and held me near
And I'm a fool but still you love
I'll be your fool for the king of love
He gave me wings so I could fly
And gave me a song to color the sky
And all I have is all from you
And all I want is all of you
It's grace, grace
I'm nothing without you
Grace, your grace
Shines on me
And there've been days when I've walked away
Too much to carry
Nothing left to say
Forgive me Lord when I'm weak and lost
You traded heaven for a wooden cross
And all these years you've carried me
You've been my eyes when I could not see
And beauty grows in the driving rain
Your ode of gladness in the times of pain
It's grace, your grace
I'm nothing without you
Grace, your grace
Your grace, your grace
I'm nothing without you
Grace, your grace
Shines on me oh yeah
Shines on me
Shines on me
I'm everything with you
Shines on me
Shines on me
It's your grace
Shines on me
Your grace
Oh
Your grace it shines on me
Your grace
Your grace
Shines on me
Shines on me
Your grace it shines on me
Your grace
I thank God for His continued Amazing Grace!
Posted by Sunny at 9:36 AM 1 comments
Friday, January 12, 2007
Family
That word has really been rolling around in my head a lot lately.
What does it mean to an infertile?
What makes a family?
Does a family involve children?
Are Grumps, Itsy and I a family?
At church Christmas Eve the pastor said, "Go home to your family and remind your children about the real reason for Christmas." I know he wasn't thinking when he said those words. I know he didn't think, there are many here who do not have children. But he said those words. I began to cry. I couldn't' t go home and tell my children about the real reason for Christmas. The words that were meant to up life and encourage cut like a knife.
I hope I can call my little life and household a family. It just doesn't seem to fit.
Posted by Sunny at 6:28 AM 7 comments
an attempt at organizing: childless
Wednesday, January 10, 2007
The Beginning of a Game Plan
I did it! I went to my doctor. When I got there everyone gave me big hugs and told me how much they missed me. I told them the same. I was there so often that I made friends with everyone.
I was prepared for an exam from the doctor but nope! We just talked. I gave him my charts. I told him how the past few cycles have been slightly different. I shared how I was afraid that my endo was returning. I looked through it and including my file and endo pictures. His only thought was doing another lap to see if and how much my endometriosis had returned.
I asked about IUI's. Would they work with me? Was it even an option? He told me that it was worth a try but he felt like I needed a specialist now. So he referred me to one of the many places around here. I will bring a copy of my file and borrow my endometriosis pictures and share my story with a new doctor. We scheduled a pap in March so we can talk about what my new plan will be.
I was excited leaving there but nervous that it would take months to get an appointment. I called yesterday. JANUARY 29th!!!!! Grumps and I will sit and talk and hopefully get an even better game plan together. IUIs? or maybe a lap first? I am not sure but the plan is now in action. My clock is seriously ticking!!!!
Posted by Sunny at 5:44 AM 7 comments
an attempt at organizing: endometriosis, IUI, RE
Sunday, January 07, 2007
My Mom
I have talked about my mom before. I have told you how she can be completely insensitive to my feelings and what we are going through.
Her compassion level for me is like ZERO. She ignores the issues that we have. Only once in a blue moon will she surprise me with true compassion. I will get a card that is meant to encourage. She will call to see how my day is. I might get a little magnet or angel or something to brighten my day. BUT things are never talked about. When I have needed caring words or a listening ear I didn't turn to my mom. I wish I could.
I have many friends who have such an amazing relationship with their moms. I want that. I have always wanted that. Now if you met my mom you would think she would be the best mom ever. She is to others. She will hold a friend's hand as they are going through a very hard time. She will sit with them and listen as they cry. To me, she ignores or gives me advice that really hurts.
I LOVE MY MOM but sometimes I wish she just understood. But she never can. My mom got married very young. She divorced a year later never having children from that abusive relationship. She married again a year later to my dad. I was born 4 days before their first anniversary. OOPS big time. My brother was planned 4 years later. My little sister came 10 years later by accident. My mom always regretted having us so early by accident. She continued to tell me how blessed I was when I didn't get pregnant right away. She can NEVER understand where I am on this journey. She would love for me to have kids but she can't understand the pain the journey has caused. How can she?
I got an email from my mom on Friday. It was nice and long. My mom NEVER sends long emails. I could tell she had worked long and hard on this email. I smiled as I read. Then I got to almost the end. This is what it said:
I got a new mag. for Christmas from a friend. a Christian mag. In it was a story about a girl who had suffered from a miscarriage. It was so good. It really opened my eyes to what you have gone thru. Not really realizing everything. I am going to send it to you. I am sorry for being insensitive to you................I just really didn't understand everything. But after reading her story it really opened my eyes to so much. The blessed assurance is that when we get to heaven our little baby is going to be waiting on us...............
I was FLOORED! It was huge that she apologized. My mom doesn't ever do that. I haven't responded yet. I think I will do that right now. I just needed some time to process it all. I know that my mom will continue to be insensitive but I have this email to remind me that at one time she realized her mistake.
She ended her email with: I love you and are proud of you. Continue to always be a blessing and to bless everyone around you.
I have let those words sing in my head over and over again. She is proud of me!
Posted by Sunny at 2:38 PM 8 comments
Philippains 4:8
I got a new Bible for Christmas. It feels so good in my hands. I actually couldn't wait to open it and read.
I haven't been very faithful reading my Bible. I have really grown in my prayer life but have left off the devotion part. I decided that I needed a change. I picked up my Battlefield of the Mind Devotional by Joyce Meyer and opened Job and began to read.
In my last post I talked about either getting a baby this year or finding peace in my life. Guess what? When began my first devotional this is the scripture I read:
"Whatever is true, whatever is worthy of reverence and is honorable and seemly, whatever is just, whatever is pure, whatever is lovely and lovable, whatever is kind and winsome and gracious, if there is any virtue and excellence, if there is anything worthy of praise, think on and weigh and take account of these things (fix your minds on them).
Do you ever think about what you are thinking about? If you are not careful, your thought life can lead you into problems. It is important to think before you act, and if you concentrate on things that are true, worthy of reverence and honorable, just, pure, lovely, kind and gracious, virtuous, and excellence, your actions will reflect God's character and heart.
I have heard that scripture a million times. In fact I had read it a few months ago and was convicted by it but never put it into practice. Since reading this verse and devotion I have changed. I used to think about not being pregnant a million times a day. It would cause great sadness. I would quickly spiral into a blue day. But now I push those thoughts away. I think all the other great things in my life. I don't let my mind stay on the sad thoughts. WOW, what a great difference my days have been.
I feel as if I have been set free. I am in a good place. No matter what happens in my life I will survive and have a rich life.
*As I told D, I am in the 2 week wait. We shall see how I am if Aunt Flow comes. I hope I can hold steady and stay strong!
Posted by Sunny at 2:23 PM 4 comments
an attempt at organizing: grace